← Return to Living with epilepsy - Introduce yourself & meet others

Discussion
Comment receiving replies
@santosha

Hi @1775house Good Morning
It will be a pleasure to share my experience with you.
As @jakedduck1 has mentioned I have Temporal Lobe Epilepsy. I have lived with it since I am a teenager, but without knowing it until I was 48 years old (2019), when my seizures became more frequent and stronger and I had many sleeping issues. As my epilepsy is refractory, I have been on alternative treatments (medical cannabis/ CBD, diets, suppression of my periods, yoga & meditation, etc.). I was about to prepare myself for brain surgery as AEDs did not work for me (some had terrible side-effects and others caused more and stronger seizures). Thankfully, I got to know someone who advised me to look for a second opinion with her neurosurgeon. And this neurosurgeon was not in favor of that surgery in my case, advising me to explore other alternatives and recommending me an epileptologist with whom I have been since 2001. I still have not yet controlled all my seizures, but I have reduced
them much and weakened them. I have about 2 complex seizures per month. I prefer to have those two seizures rather than controlling them and having all those terrible side-effects I had with some AEDs. I am back to live and smiling again.
I very much agree with what @jakedduck1 has written: 90% of what people worry about never happens anyway. This is very true in my opinion. With hatha yoga I have learned to focus more in my present time and enjoy every single moment of life.
If I can be of any help, please let me know!
Wishing you all a nice day!
Santosha/Chris

Jump to this post


Replies to "Hi @1775house Good Morning It will be a pleasure to share my experience with you. As..."

@santosha
Hey Chris,
You probably told me multiple times but what happens during your seizures? Do you usually react the same way each time? Do you wander? Have aura?
Jake