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Experiences with Mayo Proton, the Hitachi IMPT system, side effects?

Prostate Cancer | Last Active: Jul 30, 2023 | Replies (18)
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@ozelli

This thread has a lot of the info you ask.
https://connect.mayoclinic.org/discussion/what-were-your-side-effects-of-proton-therapy-both-during-and-after/

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Replies to "This thread has a lot of the info you ask. https://connect.mayoclinic.org/discussion/what-were-your-side-effects-of-proton-therapy-both-during-and-after/"
bjroc | @bjroc | Jun 28, 2023

Thanks I did post there didn't find my answers. Trying to find the person with BPH and had proton. I see they also gave you the Japanese study which you had mentioned to me, which the Mayo docs sent me too with this one:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3465790/
Looking for some of the rest of this, but also personal experience:
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Did you have BPH and did that cause issues afterwards such as happens for some with radioactive type treatments? Urinary problems?
What stage were you?
How many sessions did you have and/or total dose (Gray equivalents)?
How about what we all want to know, sexual side effects, ED, loss of ejaculation, etc?
Any recurrence if you declined ADT?

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