← Return to Inclusion Body Myositis: I'd like to talk with others

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@becsbuddy

@abuela4 Do you mind if I ask a couple of questions? You receive care currently by one of the national health research hospitals and are working with a speech therapist. Have any doctors or therapists mentioned any problem with your esophagus that’s making you consider esophageal surgery? What are you hoping to achieve with surgery? I’m not trying to dissuade you from going to Johns Hopkins.
Are you unable to get the care you need where you are? Maybe you can tell me a little more

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Replies to "@abuela4 Do you mind if I ask a couple of questions? You receive care currently by..."

My husband has IBM in advance stage, he has horrible issues with his esophagus. He chokes on every. They have done 1 procedure to stretch his esophagus but it did not work.