I have been seizure free since 2020. I only had three seizures total that year and have been on the medication since my big one in April of 2020. I began reducing the medication per my neurologist’s instructions on June 23rd. This is the first full week of reducing the dose. I currently am taking 750 mg twice daily (morning and bedtime). The headaches and then lightheaded symptoms start about an hour after taking it. I did have two MRIs and was under the care of a neurologist. We decided to stop the Keppra because on it I was a zombie and exhausted. They couldn’t find any real diagnosis as to what caused the seizures. We decided to move forward with weaning me off of the medication since there was no real diagnosis.

I had two seizures days apart randomly in my sleep and had normal exams and zero explanation and they put me on keppra. I’ve had the headaches, the “keppra rage”, depression, suicidal thoughts, anxiety/panic attacks, rapid heart beat, the list goes on! Each symptom more terrifying! I was on 1000mg and went from 130-108 and felt like I was literally dying! I had to self taper from 1000mg to 750mg because my doctors weren’t listening. Wasn’t until I did my own research and digging where I learned I’m not alone in dealing with the horrible side effects of keppra! It feels so good to know I’m not alone in this! Don’t let doctors gaslight you or make you feel crazy or ignored, Knowledge is power and gave me peace of mind. The tapering has helped with the headaches dramatically and weight too but regardless I’m trying to taper off it completely and find something safe. I hope this helps.. take care!