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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 2 days ago | Replies (415)

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@hass11

Wow.. describes me pretty accurately. Thank you for your response. I’m 10 months in at 36 y/o with two little kids at home. Very nervous of a NMD. How do you work out? Stay out of your head? I’m having a lot of trouble with it. Also, I’m horribly fatigued and have trouble getting through the day with it. Any input would help. Thank you!

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Replies to "Wow.. describes me pretty accurately. Thank you for your response. I’m 10 months in at 36..."

Unfortunately the medical journal supports the fact that exercising makes the muscles worse. That is very hard to hear. I've stayed away from everything including yoga and Pilates at this point. I have to rest my muscles all day. Keep in mind I worked full-time, 7 days a week. I owned a tax and accounting practice. (I had days where i could not type or move my arm, buy the tax returns were completed.) When I go to the doctor I tell them I cannot exercise due to my disease and they are ok with it. I walk only. Not sure what "NMD" is. Since I was diagnosed at Mayo, the local neurologist I see is liberal with prescribing medications. Thank God. It sounds as if you need to go on Tramadol asap. I take it every 5-6 hours, 4 times a day. If I miss a dose, I walk around thinking I am starting with the flu. Once I take the Tramadol, the flu like symptoms disappear. Due to all the medications, my symptoms are mostly out of mind. I thank Carbatrol for that. My brain function improved greatly once I was on this.

I think I had the disease all my life but I really noticed a problem starting in my early 30's.

I'll pray for you. Again find a good neurologist. I am in the Detroit, MI suburbs if that helps.