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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 2 days ago | Replies (415)

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@chrisfeder

Yes, I have everything. I started with muscle weakness, flu like symptoms and then muscle fasciculation began. Leg cramps more and more-then burning in my thighs. I feel really good (and sleep well) as long as I take all my medicine:
Tramadol - flu like symptoms
Carbatrol (prescribed by Mayo)- for nerve communication
Gabapentin- for tingling in legs and to help me sleep
Duloxetine-helps me sleep with pain
Baclofen (Prescribed for people with MS)- helps with leg cramps and pain in arms
Rock Tape-I apply on my right arm to help with arm pain.
My son just had genetic testing completed. They found he has the gene for "Spinal Muscular Atrophy". What it can cause sounds like the Cramp Fasciculation Syndrome. I hope a research scientist reads this and can move a cure for this disease forward.

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Replies to "Yes, I have everything. I started with muscle weakness, flu like symptoms and then muscle fasciculation..."

Wow.. describes me pretty accurately. Thank you for your response. I’m 10 months in at 36 y/o with two little kids at home. Very nervous of a NMD. How do you work out? Stay out of your head? I’m having a lot of trouble with it. Also, I’m horribly fatigued and have trouble getting through the day with it. Any input would help. Thank you!