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Anyone out there diagnosed with Pudendal Neuralgia?

Chronic Pain | Last Active: Oct 14 2:50pm | Replies (200)

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@micyew

Hey, not only am I trying to understand Pudendal Neuralgia but I also want to help this girl I care about through it. She explains that walking makes it hurt like hell at night and sitting down hurts a lot. I guess for starters I’m looking for ways to help her manage her pain and ways maybe you have found helpful.

I am also looking for clothing and shoe ideas for her that are comfortable. She has told me sneakers and such are painful and she likes to wear sandals because they help. Do you have any recommendations for these like websites to order from or something to help her feel better about her clothing as she is upset she can’t wear a lot these days.

Lastly I want to ask, what are things you have found that she could do for fun. She gets sad at her life before this and I want to help her become happy and enjoy life some more again. What are things you have found to be enjoyable and ways she could start to be happy in life despite this? What activities do you think are manageable for her?

I appreciate all your advice and anything helps out so much. Thank you in advance.

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Replies to "Hey, not only am I trying to understand Pudendal Neuralgia but I also want to help..."

This is a monster. I sat on a donut for 14 years. The only thing that worked after all that time was anti-seizure medicine for 2 weeks that I was taking for an unrelated matter. It went away instantly after 2 weeks.

Put pudendal neuralgia in the Connect search bar and previous conversations on this topic will come up. Hopefully some will help answer your questions.

Hello @micyew, I would like to add my welcome to Connect along with @mikaylar @westom and others. There is another discussion where you can learn what others with pudendal neuralgia have shared.
--- Anyone out there diagnosed with Pudendal Neuralgia?: https://connect.mayoclinic.org/discussion/anyone-out-there-diagnosed-with-pudendal-neuralgia/.

You might also find some helpful information on the Pudendal Neuralgia Association website here - https://www.pudendalassociation.org/.

Have her doctors suggested or tried any treatments to help her symptoms?

Hello @micyew and welcome to Mayo Clinic Connect. How wonderful of you to want to learn more to help someone in your life. I am hoping members @mikaylar @westcom and @johnbishop who have come to connect with you can provide you with some information.

What are some of her favorite interest/hobbies currently?