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Me & my PN: Why do I lie?

Neuropathy | Last Active: Jun 29, 2023 | Replies (30)

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@njed

@ray666 Ray - your comment - "I'm learning as I go along"....exactly!! So are all of us and this is one of the reasons I jumped into the Connect because we need to communicate and learn from others who experience the effects of living with PN. I've found that not many docs know a lot about PN but those of us with it could be the best source of information. We're living with this damn thing and learning from others how to possibly cope with it and even try some supplements and meds that might help with a little relief. Let's keep sharing information and I for one really appreciate the fact that Mayo has provided us with this source of communicating.

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Replies to "@ray666 Ray - your comment - "I'm learning as I go along"....exactly!! So are all of..."

Ditto to what you said, Ed: "I jumped into the Connect because we need to communicate and learn from others who experience the effects of living with PN." All my life, no matter how scary the monster, for me, the twofold secret to spare me from getting panicky, instead to calm me down so I can move on has always been to learn everything I can about the monster and then to talk to others who are faced with the same monster. You're right, too, about not many docs––especially those who aren't neurologists––knowing much about PN. The other day when I met with my podiatrist to talk about my feet and my PN, he said he was glad not to be a neurologist because neurologists have so much information to stay on top of. He laughed when he said that because, as we'd been talking, he had impressed me with how much he did know about PN. Onward and upward! ––Ray