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Me & my PN: Why do I lie?

Neuropathy | Last Active: Jun 29, 2023 | Replies (30)

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@njed

@ray666 - Job well done! I've read the posts from various members, and you got a lot of us thinking about our PN, how we relate to others, doctors, family members and friends....or in some cases, we don't. How to deal with this disease is recognizing it for what it is and when folks write about it, no doubt, it provides an avenue for expression. Your topics are those which we often don't bring up. But you do get us thinking. Ed

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Replies to "@ray666 - Job well done! I've read the posts from various members, and you got a..."

Thanks, Ed (@njed). I appreciate your words more than you can imagine. If I'm asking provocative questions, it's because I'm late to the dance. My PN diagnosis is still less than a year old. I'm learning as I go along. My questions, possibly naïve, grow out of my learning. I'm sure I'll continue to post my babe-in-the-woods questions, but I'm also interested in getting into the politics of PN. Only this morning, I read Gideon Lewis-Kraus's New Yorker account, "Bitter Pill," about the FDA. The article got me all worked up––in a positive way. If I say I'm having fun, does that sound too weird? How can a guy with PN be having fun? But in my own weird way, I am. Some parts of my PN are a pain (pun intended?) in the a**; however, other parts keep me energized, living in a high-octane way––and what's not fun about that? LOL Uh oh, I see it's a quarter-to-nine—time for a couple of hours of non-PN work. ::zzz:: Again, thank you, Ed, for the kind things you've said. Here's wishing you an excellent day! ––Ray (@ray666)