20% of Sjogrens patients present with neurological symptoms first, before any of the more typical Sjogrens symptoms. Trigeminal nerve is a favorite spot for Sjögrens to
impact. I had significant facial pain for several years before the dryness, crushing fatigue, and inflammatory joint pains started. There’s a Sjogrens expert who focuses on the neurological aspects at Pittsburgh, Julius Birnbaum. He used to be at Johns Hopkins; you can read about the neurological complications of Sjogrens on their Sjogrens Center website.
I haven’t seen Dr Birnbaum as I live in New England, but have a young rheumatologist and neurologist who are quite up to date and understand the whole picture. I hope you can get the care you deserve. Best wishes.