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Differentiating Carcinoid syndrome from MCAS?

Neuroendocrine Tumors (NETs) | Last Active: Jun 6 8:56am | Replies (17)
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@vinnie694

Just had my follow up MRI after 6 months, my serotonin levels were at 60, after the octreotide injection my level dropped to a normal range of 11, and I haven’t had any facial flushing for 2 months. Also there were no new tumors and no growth of the existing ones.. yes please keep me posted.. This is definitely a journey..

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pmberman | @pmberman | Jun 26, 2023

That’s great news for you. I’m happy to hear that. Fortunately, research and awareness is growing for NETs (and MCAS), which is needed to advance treatment and understanding. It took my doctors (multiple) 3 months to realize I didn’t have IBS. So many patients get turned away with oversights like that. It’s about being persistent and taking charge of your own health (as you know very well).

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