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Differentiating Carcinoid syndrome from MCAS?
Neuroendocrine Tumors (NETs) | Last Active: Aug 24 9:28am | Replies (23)Comment receiving replies
Just had my follow up MRI after 6 months, my serotonin levels were at 60, after the octreotide injection my level dropped to a normal range of 11, and I haven’t had any facial flushing for 2 months. Also there were no new tumors and no growth of the existing ones.. yes please keep me posted.. This is definitely a journey..
Replies to "Just had my follow up MRI after 6 months, my serotonin levels were at 60, after..."
Hi, do you know if really bad itching on top of the flushing is typical of CS, also, my flushing is full neck face and head and basicaly constant, the itching is better with antihistamines but the flushing is solid and almost constant for two months. My docs are leaning more to high cortisol and stress, but of course you know what my fear is
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That’s great news for you. I’m happy to hear that. Fortunately, research and awareness is growing for NETs (and MCAS), which is needed to advance treatment and understanding. It took my doctors (multiple) 3 months to realize I didn’t have IBS. So many patients get turned away with oversights like that. It’s about being persistent and taking charge of your own health (as you know very well).