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I don't know what to do anymore

Post-COVID Recovery & COVID-19 | Last Active: Jan 8 6:33am | Replies (42)

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@rwinney

Hello and welcome @atassi15 - You are majorly tugging on my heart strings. I'm so sorry for what you, and others I am reading posts from, experience from long-COVID and it's lingering, odd, annoying and frustrating symptoms. Feeling like you are 85 when you are only in your 30's down right sucks. I said the EXACT same thing! Debilitating was the word I used.

Interestingly enough, I have never had COVID, but I know what you are going through and feeling as a result. Since childhood, I experienced hypersensitivity and pain but, never knew why (thought I was just some sort of "delicate flower"). In my early 40's, after having eye surgeries, my symptoms rapidly increased and became debilitating. I had to step away from my job of 27 years. It freaked me out and turned my life, and my family's life upside down. Quality of life had sadly diminished and no one, including doctors and a gazillion tests, did not know or understand why. Meds, procedures, injections... all lost effectiveness. I was in the "cycle of pain".

I believe you, and am happy to see you've found solace with other Connect members walking along side you like @karen8 and @longcovidcelsi. There is strength in numbers. You are not making anything up, it's not in your head. The "popcorn" symptoms that keep popping up and not going away, feeling like a hypochondriac, doubting your sanity...you are not alone - there is hope, my friend.

Here is what my game changing moment was, and I believe could be yours:

Central Sensitization Syndrome - Dr. Christopher Sletten -

- https://www.youtube.com/watch?v=vJNhdnSK3WQ

Please take a moment to watch this video from Dr. Sletten of Jacksonville's Mayo Clinic Pain Rehab Center? I think you will find validation and learn more about your mind and body with regard to being a COVID long-hauler. I think you will grasp what Central Sensitization Syndrome (CSS) and how to help yourself. I want you to be able to recognize yourself again, and you will, keep the faith.

Will you, and anyone else watching the video, please let me know your thoughts and if it resonates with you? Thank you

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Replies to "Hello and welcome @atassi15 - You are majorly tugging on my heart strings. I'm so sorry..."

Extremely good video 😁