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Differentiating Carcinoid syndrome from MCAS?

Neuroendocrine Tumors (NETs) | Last Active: Jun 6 8:56am | Replies (17)
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@vinnie694

They were validated from the biopsy, but the MRI picked up on it, MRI stated features are suggestive of metastatic neuroendrocine tumor, recommend biopsy.

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Replies to "They were validated from the biopsy, but the MRI picked up on it, MRI stated features..."
pmberman | @pmberman | Jun 26, 2023

Ok thanks so much! I’ve had contrast CTs and a Dotatate isotope PET scan. Didn’t show NETs, but I want the MRI before ruling anything out. Also going to re-take the 5-HIAA test since it was slightly elevated but I didn’t realize I was supposed to be on a specific diet when I took it. Hope you are doing well! And thank you for the response. I’ll keep you posted. It’s good you make people aware of carcinoid syndrome because it sounds like it’s often misdiagnosed as MCAS or some other condition.

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