← Return to Differentiating Carcinoid syndrome from MCAS?

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

I am sorry to hear that you are still finding it difficult to get a diagnosis for your health issue, @pmberman. On Connect, there is a discussion on this disorder. I would encourage you to read the posts. Here is the link,
https://connect.mayoclinic.org/discussion/mast-cell-activation/?commentsorder=newest#chv4-comment-stream-header
Here is some information from the National Institute of Health which will offer more information on this rare disorder,
https://rarediseases.info.nih.gov/diseases/12981/mast-cell-activation-syndrome

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Replies to "I am sorry to hear that you are still finding it difficult to get a diagnosis..."

is it typical for carcinoids to have severe itching on head and face on top of the flushing, also my flushing is not stop, basicaly, every now and then it chills but you can always tell my neck and full face are red. I'm hearing bad itching isn't a symptom. Docs think maybe thyroid or high cortisol, my stress this year is insane with four major deaths, I've been fighting this for 8-10 weeks