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Shingrix and peripheral neuropathy

Neuropathy | Last Active: Mar 12 1:36pm | Replies (530)

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@irishk

Within days of having Shingles 5 years ago, I got neuropathy in my feet. After getting the 1st Shingles vaccine last July, my gait considerably worsened and I had to start using trekking poles to go on a short walk. I told my Neurologist about it and she told me to get the 2nd Shingrix vaccine, which I did last December. I am sorry that I did, as I developed PN in my hands! Worse then the pain was the tender/sensitive fingertips, making any activity with my fingertips painful. We need our hands for everything, cooking, putting shades up, bathing, shampooing, etc, etc For some odd wonderful reason the sensitivity has lessened. I had to have someone come cook for me for awhile. The intense pain is nearly gone, thank goodness, though occasionally, I awaken with severe pain in my left thumb, which only lasts for about 10-15 minutes. The 4 plus hours of pain nearly did me in. I tried a quarter to a half of the 100 mg capsule of Gabapentin, but was so hung over for 24 hours, I could barely function. What worked for the intense pain was a Shingles cream, by Dermachange, that I bought online. The general Neurologist, after hearing my whole history, did not think it related to the Shingrix vaccine. He thought that the PN had progressed. However, I think that I understood the Neurophysiologist who did the testing, say that PN can develop from vaccines, and that it usually happens in about 3 weeks. I will check with him before getting the flu
Covid vaccine in the fall. I had had a lot of vaccines in a short period of time, 2-3 years, 5 Covid, 2 flu, 2 Shingrix!

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Replies to "Within days of having Shingles 5 years ago, I got neuropathy in my feet. After getting..."

My husband got shingrix and then developed painful mouth sores which lasted a few weeks and went away. A few years later he got the Covid vaccine and developed numbness in his tongue. Got the 2nd vaccine and the whole left side of his mouth is numb and his tongue feels on fire some of the times. Doctors say it is a coincidence and not related to vaccine. 🤷‍♀️

Thank you for this post. Could you please let us know what the neurophysiologist recommends about the flu vaccine after you check with him? I'm trying to decide if the flu vaccine will be safe for me after I developed sensory and motor peripheral neuropathy due to the Covid vaccine.