Prescribed Pregabalin 50 mg but I dont have pain or tingling.

Posted by SteveSH @steveny9, Jun 24, 2023

I recently met with a new neurologist due to numbness from SFN. I don't have pain and it is non-diabetic SFN. She prescribed Pregabalin 50 mg at night. If I do not have pain is there any benefit to taking this medication? I have numbness that has progressed from the foot, fingertips and 6" above the ankle.

Thank you in advance

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@steveny9
Personally, if a medication isn't noticeably helping, I wouldn't take it. Because I have epilepsy I have taken many different seizure medications none of which have ever helped my neuropathy. Of course that’s not to say they won’t help yours.
I took Lyrica for treatment of Focal seizures but I also had neuropathy. It didn't help either condition, instead, I developed partial paralysis. My neuropathy numbness progressed from the bottom of my feet to my waist.
It's debatable if medication helps numbness. 50 mg is a minimal amount. I was taking 600mg. But seizure patients normally require more.
I would question your doctor on the dose unless you're just starting it.
Take care,
Jake

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@jakedduck1

@steveny9
Personally, if a medication isn't noticeably helping, I wouldn't take it. Because I have epilepsy I have taken many different seizure medications none of which have ever helped my neuropathy. Of course that’s not to say they won’t help yours.
I took Lyrica for treatment of Focal seizures but I also had neuropathy. It didn't help either condition, instead, I developed partial paralysis. My neuropathy numbness progressed from the bottom of my feet to my waist.
It's debatable if medication helps numbness. 50 mg is a minimal amount. I was taking 600mg. But seizure patients normally require more.
I would question your doctor on the dose unless you're just starting it.
Take care,
Jake

Jump to this post

Thank you for your reply.

I haven't taken it yet because I rather not add more chemicals into my body if it is not going to do anything.

I cant see the point of taking it if I am not in any pain nor do I have seizures.

She said she wanted to start me at a low amount to start, but I dont like what I read about the side effects.

Does your neuropathy go past your knees?

thanks Jake

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@steveny9
Yes, my neuropathy goes slightly above my waist and it caused ED and constipation problems.
My neuropathy started about 35 years ago with all the pain sensations, burning, stinging, aching, stabbing, tingling, numbness, pins and needles. Then about maybe 25 years later the pain stopped and the numbness began.
I’ve taken anticonvulsant drugs for 56 years and my recommendation is if you don’t need them don’t take them. And I’ve taken around 300,000 seizure pills and if I didn’t have a rare potentially life-threatening type of seizure I’m not so sure I would take them. It seems most everybody that takes some complaints of memory problems, balance issues, concentration problems, and fatigue. Although I have to admit, I’ve been lucky. Compared to most people I don’t have a lot of side effects from them. But the memory and balance issues alone in my case are quite severe. However, I have other contributing factors for those problems.
One day I was at my doctor's office, and the waiting room was almost full and we got to talking about Lyrica. Everyone there had taken it and it hadn’t helped anyone and everyone was complaining about how awful it was. But I have a friend with fibromyalgia, and she says it really helps her. She loves this stuff but you couldn’t pay me to take it again.
with fibromyalgia, and she says it really helps her. She loves this stuff but you couldn’t pay me to take it again.
I wonder if your doctor has actual research studies that shows the Lyrica helps numbness. I would ask her some very direct questions as to why she want you on it and what she expects it to do for you. Oh, and you might want to stand in front of the door so she can’t leave the room until she answers your questions. I did that once. She squawked about needing to see other patients and I said something to the effect that I expect something for my money. She calm down and answered my questions which she should’ve done in the first place.
Take care,
JakeShe squawked about needing to see other patients and I said something to the effect that I expect something for my money. She calm down and answered my questions which she should’ve done in the first place.

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@steveny9, My Mayo primary care doc prescribed 300 mg gabapentin when I first complained and was looking for help for the numbness and some tingling in my feet from neuropathy which I had for over 20 years. I had avoided seeking a diagnosis because my previous PCPs had told me I could have some nerve testing done but there was nothing they could do for the numbness so I didn't seek a diagnosis. After taking the gabapentin for a couple of weeks I met with my PCP and told her it wasn't helping, then she brought in a couple more Mayo docs on her team who said gabapentin wouldn't help unless you have neuropathic pain. Then I setup an appointment with the Mayo neurologist, got tested and found out, yes you have idiopathic small fiber peripheral neuropathy and there isn't any medication that helps. That's what started my journey on Connect and learning more about my condition.

Best thing you can do for yourself is to keep searching, reading and learning as much as you can about your symptoms, conditions and possible treatments. My two go to sites for neuropathy are:
--- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview
--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/

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@jakedduck1

@steveny9
Personally, if a medication isn't noticeably helping, I wouldn't take it. Because I have epilepsy I have taken many different seizure medications none of which have ever helped my neuropathy. Of course that’s not to say they won’t help yours.
I took Lyrica for treatment of Focal seizures but I also had neuropathy. It didn't help either condition, instead, I developed partial paralysis. My neuropathy numbness progressed from the bottom of my feet to my waist.
It's debatable if medication helps numbness. 50 mg is a minimal amount. I was taking 600mg. But seizure patients normally require more.
I would question your doctor on the dose unless you're just starting it.
Take care,
Jake

Jump to this post

I have Trigeminal Neuralgia. It is very painful. I have great difficulty brushing my teeth, and without Pregabolin 50 mg. I would not be able to talk or eat. I take the smallest dose I can because it makes me quite sleepy. I sleep all night and approximately 2-4 hours in the afternoon. I also put Baby Teething Medication on the gums when they are painful.
Gin5009

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@johnbishop

@steveny9, My Mayo primary care doc prescribed 300 mg gabapentin when I first complained and was looking for help for the numbness and some tingling in my feet from neuropathy which I had for over 20 years. I had avoided seeking a diagnosis because my previous PCPs had told me I could have some nerve testing done but there was nothing they could do for the numbness so I didn't seek a diagnosis. After taking the gabapentin for a couple of weeks I met with my PCP and told her it wasn't helping, then she brought in a couple more Mayo docs on her team who said gabapentin wouldn't help unless you have neuropathic pain. Then I setup an appointment with the Mayo neurologist, got tested and found out, yes you have idiopathic small fiber peripheral neuropathy and there isn't any medication that helps. That's what started my journey on Connect and learning more about my condition.

Best thing you can do for yourself is to keep searching, reading and learning as much as you can about your symptoms, conditions and possible treatments. My two go to sites for neuropathy are:
--- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview
--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/

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Sounds very familiar.

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