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Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:28pm | Replies (113)Comment receiving replies
His Dr. initially wanted him to take a break from chemo after six months but with about 20% shrinkage after each three month cycle and good lab results, he said he can stay on it for up to 13 months. He will be receiving the lanreotide monthly injections for the rest of his life. If the cancer becomes more aggressive he will resume chemo.
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Ask your doctors about adding Temozolimide to your regimen. It is an oral chemotherapy that is combined with the Lanreotide/Sandostatin injections and is usually well tolerated. Take solace, I have stage 4 advanced metastatic Paraganglioma, multiple surgeries, radiation and still the oncologist feels I can live a long life. Stay on top of the dr. appointments and subsequent treatment decisions and know that neuroendocrine cancers are normally slow progressing. Also talk to the dr. about having genetic testing is it can assist future treatment decisions.
God bless you☀️☀️☀️