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Trigeminal Neuralgia, Sjogrens Disease or something else?
Autoimmune Diseases | Last Active: May 23, 2024 | Replies (33)Comment receiving replies
I just watched a neuro immunologist speak named Aaron Boster on some of the invisible symptoms of MS. I have Sjogrens Disease and it affects my tendons… and was watching him as i have been developing a whole new set of symptoms wondering if any were ms like. He talked a lot about the face pain… and many of the symptoms you mentioned your wife has. Worth a listen. It was on YouTube.
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20% of Sjogrens patients present with neurological symptoms first, before any of the more typical Sjogrens symptoms. Trigeminal nerve is a favorite spot for Sjögrens to
impact. I had significant facial pain for several years before the dryness, crushing fatigue, and inflammatory joint pains started. There’s a Sjogrens expert who focuses on the neurological aspects at Pittsburgh, Julius Birnbaum. He used to be at Johns Hopkins; you can read about the neurological complications of Sjogrens on their Sjogrens Center website.
I haven’t seen Dr Birnbaum as I live in New England, but have a young rheumatologist and neurologist who are quite up to date and understand the whole picture. I hope you can get the care you deserve. Best wishes.