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Feeling discouraged and too many specialists
Neuroendocrine Tumors (NETs) | Last Active: Jun 30, 2023 | Replies (30)Comment receiving replies
Well, that doesn't describe me at all either. I guess that I need to find another group. I find it ironic that a member of my care team just called to help me with some insurance paperwork. I told her that I really appreciated her help. I asked her when was the last time a patient told her she was appreciated? She said it was the last time I told her. That was a month ago.
Replies to "Well, that doesn't describe me at all either. I guess that I need to find another..."
It's great that you are getting your care needs met.
But it's unusual. The original poster has had more of the same experiences I have had. Multiple doctors who have very specific specialities, like an endocrinologist who only looks at the pituitary gland. None of them talk to each other. As complicated patients, our needs can be more than a PCP can handle.
It's a lot sometimes.
But you are still in the right place. People talk about NETs here: their doctors, their treatments, etc.
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Please know, @tomrennie, that you are appreciated in this forum. Your willingness to share with others and offer your experience is what this group is all about.