Connect
← Return to Remedies for Joint Discomfort/Pain on AI ( Anastrozole)
Discussion
Remedies for Joint Discomfort/Pain on AI ( Anastrozole)
Breast Cancer | Last Active: Aug 5 12:32pm | Replies (94)Comment receiving replies
I have to confess that if I was given appropriate info at the onset at the start, I am not sure that I would have refused Anastrozole or Letrozole. I opted for Anastrozole and found myself now dealing with side effects that left me HAVING to consider the impact on my day-to-day life. I am self-forgiving enough to realize you can’t get answers when you don’t know the question.
So here I am hoping my body will carry on without Anestrozole - that my diligence through all these years of mamos will continue to be my safety net along with whatever new options become a viable life saving option. I am grateful for all those out there who are working on the future chapters that will offer us any consideration.
My general request is that success be a journey not an event that the Medical profession embraces. We soldiers in the trenches need you to contemplate what you are hearing from us and have the wisdom and professional courage to deal with what you are hearing from us. You are dealing with our bodies. We are living with our bodies.
I think it might be true that the brain fog has left my list of side effects and my confidence has become a welcomed return. This forum has given us all a place to reset and value our hopes and concerns. ❤️
Replies to "I have to confess that if I was given appropriate info at the onset at the..."
First Breast Cancer vaccine trial.
https://www.healthline.com/health-news/meet-jennifer-davis-the-first-woman-to-receive-a-new-vaccine-for-breast-cancer
So, it might be 5 years before this can be given to most people, including those who already have had breast cancer. Article said that it would work on most breast cancers.
I’m going for an mri because I need to make sure that’s it’s not something worse than a reaction to Anastrozole. I was on fone with Breast cancer care in York and nurse git back to me, after she had consultation with her colleagues , that my meds will b changed after we get results of mri. In the meantime she said that f I wanted to stop Anastrozole, I could. I’m going to stop. 🤷♀️
Connect
Well said Gini @ginip
Like you said, we are the ones that have to endure the treatments. We need to consider quality of life impact not just longevity. Sometimes I feel like a statistic to my doctors. If things go wrong that’s just one person as my doctor sees it and they still have an excellent record overall, but to that one person it’s everything.
Before I started radiation treatment the doctors made it sound so routine with no concerns. I asked a lot of questions about how it might impact pre-x conditions I had. My radiation oncologist said, “Thank you for reminding me there is a real person on the other end of this. Sometimes we doctors just get so used to ordering treatment routinely that we forget there is a real person on the other end saying you’re going to do what to me???”
It felt good to be acknowledged as a human instead of a Petrie dish at that moment. I did end up having unexpected issues due to my pre-x neuropathy, but once healed I was glad I had the treatment.