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Anyone have HIDA scan due to LT Covid?
Post-COVID Recovery & COVID-19 | Last Active: Jun 28, 2023 | Replies (7)Comment receiving replies
@athomason
The results were normal, just as you suspected. Makes me mad that i put myself through radioactive materials for nothing. I did have a CT scan, twice in the last few years and it showed normal results and like you, every test imaginable. You must have been in good hands of an MD and/or radiologist that diagnosed mesenteric pannicultis. Funny you mentioned at times it goes away as I have noticed the same, but right now its really bad.
Given it's so rare, no doubt that's why it was not diagnosed, but definitely sounds like what I have. And just like LC brings on inflammation it makes sense. I also have EXTREME weight loss (127 lbs down to 89 lbs).
Were you given any meds?
All the Doctor's I've have provided no help, that includes Mayo! May ended up being a total waste of time and mostly money! The internal MD I saw said I had LT Covid ordered tons of tests and blood work, my follow up call he prescribed a med and I have been trying to reach him since because of side effects, made about 15 calls, reaching out via mychart and he will not return my call. The schedulers and his assistants say he's too busy.
I'm so ill and can't get help anywhere. Even the report he sent to my primary MD did not indicate I have LT Covid or mentioned the med he prescribed. My primary MD is of no help and thinks it's just anxiety.
Replies to "@athomason The results were normal, just as you suspected. Makes me mad that i put myself..."
Hi @summerof42
Know that frustration of records not reflecting your actual symptoms, daily challenges, remedies tried/failed.
Most healthcare systems have patient advocates and social workers who can assist in their process of actually correcting records as the typical medical records dept process does not usually result in timely and helpful assistance with our difficulties and limitations maneuvering their automated processes or inability to reach dept staff. Hope this helps🌈
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The only thing that was slightly abnormal during the worst part was my ALT was a bit elevated. Not enough to where my internist was worried, but enough to worry a GI who was smart enough to be thinking outside the box and got the CT at that time. I am not on any meds other than small dose metoprolol for my POTS that I also developed from covid, and tumeric and probiotics. I take alot of CBD which helps with inflammation and anxiety. I just recently got my medical marijuana card, but haven't experimented too much with it. Another thing that I have recently started is neurofeedback. Non-invasive and my insurance pays for it. I have had 5 sessions and it seems to be helping with some of the fatigue, insomnia, and ability to deal with not being my normal self. I am here if you ever need to talk about any of this. I know how alone you can feel.