I changed GP after he dismissed my concerns of GFR dropping 10 points in 3 months, from 65 to 55. He had not apprised me; had not made note of it. Said all the readings were in normal range. I insisted on seeing nephrologist. He refused to make referral. I studied publications from NIH, Mayo Clinic, others. They say 55 is not normal, but Stage 3a. I posted findings in note to GP, who grew adamant in reply, that there is no reason for me to see nephrologist. Meanwhile, my GFR dropped to 46, 9 points in 2 weeks, discovered in ER when it was thought I had a DVT. The ER MD made referral to specialist, and I began search for another GP.
The lesson here is to be an informed patient. Study your test results. Demand test results and explanation with direct medical advice for sudden changes. Do not accept dismissive attitudes. Find a GP/PCP who listens and responds with empathy.
I chose a internal medicine specialist as my PCP. He studied my charts before the new patient visit. He asked the same question I had asked which the GP had ignored. WHY HAD MY GFR DECLINE 10 PTS IN 3 MONTHS, AND 19 POINTS IN 8 MONTHS.
He ordered urinalysis which showed blood in urine. CT scan showed cysts. MRI defined cysts as benign. But I will see urologist in Sept.
My mother died of renal failure at 86, having endured CKD all her life from adolescence. So genetics may play a part.
Good news from recent blood work, the GFR has rebounded to 54. But I will still see the urologist for assessment.
1. BE AN INFORMED PATIENT.
2. QB YOUR OWN CASE FOR KNOWLEDGE ABD UNDERSTANDING.
3. ASK QUESTIONS ABOUT WHAT YOU DO NOT UNDERSTAND, THE JARGON OF TESTS, THE DIAGNOSIS, TREATMENT PLAN AND PROGNOSIS.
4. EXPECT CLEAR REPLY IN TERMS YOU CAN UNDERSTAND. TAKE COPIOUS NOTES IN THE DOCTORS OFFICE, SND AT HOME WHEN QUESTIONS ARISE.
Best wishes in your journey.
Maurice in Mineola