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Typical length on Azithromycin and Ethambutol before negative culture
MAC & Bronchiectasis | Last Active: Jun 27, 2023 | Replies (9)Comment receiving replies
There were a lot of bumps in that first 9 months which was after a treatment interruption at start of Covid pandemic
I was on 3-4 medications at different times and did show a steady decline in bacterial load over those months so that was why we waited on Arikayce
I stayed on full daily amount of azithromycin, clofazimine and Arikayce and 3xs per week ethambutol for 18 months once cultures were negative. ( had become allergic to rifampin)
Guidelines say 12 months but there is a small study from Japan that suggests at least 15-18 months is better in reducing relapse with same bug
Arikayce side effects were better after two months
It was a slog, but yes energy is better off meds
Replies to "There were a lot of bumps in that first 9 months which was after a treatment..."
How was it with the Rifampin for you? I had a lot of problems with it after 13 months. FINALLY after 2 hospital stays, the last hospital paid attention an took me off it.
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Thank you so much for elaborating. So, you had 9 months plus the additional 18 months of treatment? Yes, that was quite a slog. You endured a lot and were successful. Congratulations to you!
May I ask how old you were during this period? You seem to have tolerated the treatments well. Also, what was your dose of Clofazimine?