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← Return to stage IV cervical cancer
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Good morning! Thank you for reaching out. This is the most frightening time in my life and the support is so welcome. I was diagnosed two months ago and prior to tests they thought it could be stage II but after testing and biopsies they all agreed that it's stage IV metastatic cervical cancer. My team is meeting right now, as they do every Monday and I'm hoping that they will have a plan is place. My regular meeting with my oncologist is this Friday so I will know what is in place for me. Whatever the plan, I will be strong and pray for the best outcome possible. I am not a candidate for surgery, so I know that is off the table.
With support like you have given and talking to those in similar situations, it is helping already. Thank you so much for your time!
Replies to "Good morning! Thank you for reaching out. This is the most frightening time in my life..."
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Hi mmchap2120,
I was diagnosed with stage IV metastatic cervical cancer in 2021 when cancer spread to lymph nodes in my neck. I had immunotherapy treatment which was ineffective so I went on carboplatin and taxol chemotherapy which resolved the lymph nodes in my neck but then the cancer spread to the wall of my bladder so I was put on a new chemotherapy drug called Tivdak. After 6 infusions, I was taken off this drug due to worsening peripheral neuropathy. Since then my PN has gotten much worse. The cancer on the wall of my bladder has improved and stayed stable at my last CT scan in April. If they decide to put you on Tivdak, the results are very mixed. Some patients do very well and have had as many as 15 infusions and others find it doesn't work for them at all. The side effects also vary greatly. Some are very sick with nausea and vomiting and lose their hair. Other' like me only had occasional bleeding from the nose, itching, no hair loss and peripheral neuropathy. If you have PN already, I am not sure if Tivdak is a good idea as mine
has worsened so dramatically after I finished treatment. You are lucky that you are at the Mayo clinic where you have a whole support team. I am sure they will give you the best treatment possible.