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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 3 days ago | Replies (6026)

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@painfully64

Hello everybody! I am at my wits end. You can call me DrP64 if you don't mind. I retired with 23 years military svc. Even though I use the VA I have also opted to use community care services where I can seek medical care. I deployed multiple times overseas and on my last tour recieved a serious crushing injury to my spine. For the longest time the VA conflate my spinal injury to the peripheral neuropathy. I am not even boarder line diabetic the pain showed up one day 4 years ago and has never left but gotten worse where in the last 6 months it has permanently spread to my hands and fingers. It took 3 back surgeries in 2 years to finally find a surgeon to fix the back issues that was in March this year and has worked great for the problems it was causing but now the neuropathy seems to have picked up a step as like today unable to get out of bed and walk. Feet are killing me and trying to stand my knees are very weak. My right knee is a full replacement just so you know. My hands struggle to function to push me up. Some big name medical hospitals want to put a back stimulator in but I'm not convinced that it will do anything for my legs and hands and have not been shown any data to back up any type of success rate so not sold on any of that yet. I am on morphine 3X a day as well as gabapentin and all I get is a slight numbness of the pain no real relief. No one has given me anything as to how this disease progresses or anything besides the stimulator as a treatment. The pain has gotten me extremely depressed at times because it makes any type of life style impossible. Please I am in southren Virginia give me some kind of direction and information on helping me handle this disease. Thank You Sincerely

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Replies to "Hello everybody! I am at my wits end. You can call me DrP64 if you don't..."

Hello DrP64 @painfully64, Welcome to Connect. Sorry to hear you are struggling with the neuropathy pain progressing. I know it can be pretty distressing worrying about the progression especially when you have so much pain with the neuropathy. I also have neuropathy but don't have any pain with it, just the numbness and some tingling. I shared my story in another discussion here: https://connect.mayoclinic.org/comment/310341/. It is good to be concerned and question treatments. Spinal cord stimulators have helped some people while others not so much and they are not without risks. My best suggestion is to do what you are doing now, searching for what helps the pain and learning as much as you can about your condition.

The Foundation for Peripheral Neuropathy has a lot of good information on complementary and alternative treatment, as well as video resources to help you learn more about neuropathy - https://www.foundationforpn.org/living-well/.

Have you done any research on alternative or complementary treatments that might provide pain relief?