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This is Where We Are

Post-COVID Recovery & COVID-19 | Last Active: Jun 27, 2023 | Replies (8)

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@marcslifer

I think having a clinical team that is somewhat familiar with long covid really helps. I'm enrolled in the "post covid" clinic at Mt. Sinai in NYC. One of the first things that my PA Coordinator said was that covid tended to find our weaknesses (e.g. in my case, a slight hand tremor that I've had for a couple of decades {I'm 73} became so pronounced that I can no longer put in contacts). The neurologist that I saw (for the tremors and brain fog) said, "If it will make you feel better, I can order a bunch of tests, but I can almost guarantee that they'll all come back "normal". I'm not a clinician, but I think the theory that covid (and some other viruses) cause micro-clots that block blood flow through capillaries (reducing overall blood flow to various organs, including the brain) makes some sense. I guess we'll see.

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Replies to "I think having a clinical team that is somewhat familiar with long covid really helps. I'm..."

I agree with covid targeting the areas of the body that we’ve had weaknesses. My first symptom of covid, before the fever was pain in my left ankle that I had broken and had surgery on 14 years ago😳Next issue was overactive bladder symptoms, causing accidents on the way to the bathroom with no real sense of urgency. I’d had a UTI two weeks prior. Being treated now for this AC diagnosis of overactive bladder. I’ve had varicose/spider veins for years. 3 weeks after testing positive for covid my feet and ankles both started swelling. A few weeks later it included my calves. A few more weeks, and it had crept up to both knees affecting mobility. It didn’t respond to elevation or icing. I searched online, self diagnosed it as lymphedema, then got the formal diagnosis. We have a local Lymphedema clinic that I was referred to. Went 2x a week for a few months to get the swelling under control and until insurance approved a compression pump for home. Right now my biggest concerns are shortness of breath and body aches, and a random cough that comes out of nowhere. My biggest breakthrough was in finding a local post covid clinic. First was a Zoom interview, just listening, answering questions. Second was in person. More answering questions, getting inputted into laptop, followed by referrals for sleep study, pulmonary function test, 6 minute walking test, and chest X-ray. Diagnosed with severe sleep apnea, and have to go back in a few weeks to try out different masks, canula etc. All of these conditions are new to me but targeting areas of my body that I’ve had issues with in the past.