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Anyone have input on living with symptoms from cardiomyopathy?
Heart & Blood Health | Last Active: Jun 25, 2023 | Replies (43)Comment receiving replies
@marsims, that is the single best thing you can do...learn as much as you can about what you've been diagnosed with. We have to be educated so we can be our own best advocates when it comes to treatment, medication, exercise, diet, life in general. I admire your attitude. Faith is powerful. It is having confidence in what we hope for and assurance for what we do not see. (Hebrews 11:1)
It must be unsettling to say the least worrying about if/when you may have a heart attack! That would make anyone anxious! When do you see your doctor next? Maybe that would be a good opportunity to ask for a second opinion? The Mayo Clinic is a world leader in complicated cases. Are you near a Center of Excellence (COE) like the Mayo?
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You have truly been my angel today. You are so encouraging and supportive. I had a cardiologist in New Jersey, Standford university medical in California and now my current cardiologist at the University of Alabama. None of the cardiologists ordered the test to get to the bottom of my fast heart rate. I finally found a group of cardiologists who teach about this disease- made an appointment and he ordered the stress test. However due to other medical conditions, I became extremely tired and was referred for a heart cauterization. I am meeting with my primary care physician for recommendations on other opinions. I don’t want to go back to the doctor who blew off my fast heart rate. I had no real pain or other symptoms but feeling tired. Sorry for the long summary. I shared everything as it might help someone else. Thank you❤️