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@hopeful33250

Hello @rose4jim2417 and welcome to the NETs support group on Mayo Connect. What an encouraging report of your husband's tumor shrinkage after six months of treatment. You both must be thrilled with the results.

You said, "He feels like he did pre symptoms." As you are comfortable doing so, please share what type of symptoms he was having that led to the NETs diagnosis.

Did he have many side effects from the treatment?

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Replies to "Hello @rose4jim2417 and welcome to the NETs support group on Mayo Connect. What an encouraging report..."

Hi Teresa, we’re happy to share our experience. In late July of last year Jim began to experience unexplained weight loss, losing 20 pounds in one month. He experienced acid reflux and diarrhea daily. He used Pepcid for some relief of these symptoms for two months before treatment started. His symptoms stopped almost immediately after starting CAP/TEM even prior to the monthly lanreotide injections. He does have neuropathy on his feet which prevents him from walking more than 40 minutes at a time. He uses heel balm on his feet, which helps immensely.