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DiscussionDiagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:28pm | Replies (113)Comment receiving replies
Replies to "Hello @rose4jim2417 and welcome to the NETs support group on Mayo Connect. What an encouraging report..."
Hi Teresa, we’re happy to share our experience. In late July of last year Jim began to experience unexplained weight loss, losing 20 pounds in one month. He experienced acid reflux and diarrhea daily. He used Pepcid for some relief of these symptoms for two months before treatment started. His symptoms stopped almost immediately after starting CAP/TEM even prior to the monthly lanreotide injections. He does have neuropathy on his feet which prevents him from walking more than 40 minutes at a time. He uses heel balm on his feet, which helps immensely.