Connect
← Return to Looking for information on CAPTEM treatment
Discussion
Looking for information on CAPTEM treatment
Neuroendocrine Tumors (NETs) | Last Active: Aug 6, 2023 | Replies (31)Comment receiving replies
My husband has been on CAP and TEM and also a monthly injection of lanreotide for the past nine months. He was diagnosed in October 2022 with inoperable neuroendocrine tumor cancer, with a large tumor on his pancreas and inumerable spots on his liver, also on his spine and some lymph nodes. He takes olanzapine 5 mg for his nausea from the 5 days on TEM. His cancer has shrunk 40% so far. He experienced a metallic taste the first few months, and it disappeared on its own. He feels great.
Replies to "My husband has been on CAP and TEM and also a monthly injection of lanreotide for..."
Finished first CAPTEM yesterday. Only mild stomach upset so far. Best news is sugars are seeming to normalize already . Feeling this is a good sign.
Connect
This is good to know. I thank you. My husband started 5 fu last September and did 6 months before he had to stop because of inability to eat and neuropathy. His shrank over 50 % but have started growing again so they are trying the Cap Tem. We are only 2 days in. It is good to know what to expect. I am happy to hear your husband is doing well on this. Thank you.