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Me & my PN: Why do I lie?

Neuropathy | Last Active: Jun 29, 2023 | Replies (30)

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@ray666

Hello, centre! (@centre)

Your post is chock full of spot-on observations. My partner knows very well how much my PN has changed me, possibly not "that much" in her eyes, not yet––more in my eyes, mainly because my poor balance is still chiefly internal, its most minute fluctuations discernable only by me. It wasn't because I thought my partner "didn't know" (she certainly does), but because I have recently noticed a mounting number of fluctuations all going in the wrong direction, I felt I owed her an update.

Did I mention "bucket lists" in my post? OMG! I'll have nothing to do with bucket lists! If I used the phrase, it was only because it "felt" like a fun phrase to use at the time. LOL

Ah, the all-important question of living conditions! If you've read any of my earlier posts, you may already know that my partner and I live separately: two houses, two miles apart. But we are presently considering combining households. The question is: Which house to keep? Which house to sell? Hers is a two-story, plus an attic and basement. Mine is a one-story with no attic and no basement. You'd deciding which house to keep and which to sell would be a no-brainer, but it's not, for reasons that … well, join me over in Mayo's "This Old House" forum! LOL

I like what you say: "And you never know, thinking about that response may lighten someone else's load." I'm much concerned with lightening someone else's load when and if possible. Among the many things I've learned here is the amount and severity of real pain many others endure daily. It has made me reticent (to a degree) to announce while yes, I do have PN, poor balance (thus far) is my only symptom, that's a topic for open discussion between my doctor, my partner, and me; I've no pain (thus far), for which I am profoundly grateful. Otherwise, live––and present––with wholeheartedness. After all, why not?

Onward and upward, eh? LOL

Cheers!
Ray

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Replies to "Hello, centre! (@centre) Your post is chock full of spot-on observations. My partner knows very well..."

The question is: Which house to keep? Which house to sell? Hers is a two-story, plus an attic and basement. Mine is a one-story with no attic and no basement. You'd deciding which house to keep and which to sell would be a no-brainer, but it's not, for reasons that … well, join me over in Mayo's "This Old House" forum! LOL
My neighbors - single cousins who had always lived near & helped each other faced this and couldn't decide. So they bought a side-by-side twin home. If the need ever arises for them to have interior access to help each other, it is configured so doors can be conveniently installed between their spaces. Best of all, they have gone from two large yards and gardens to a postage stamp sized yard and flower bed on each side, and a heavily treed & mulched gathering space along side that could again be allowed to go natural.
I though it was a genius idea, and their grown kids do as well.

As far as who I share my health issues with? It depends. My docs. I have stopped pretending with my husband & kids, my sisters, a few close friends. My coworkers in my volunteer activities know my limitations to the extent needed. My more casual friends...only as much as necessary.

Most of my reluctance to share comes from not wanting to join the "old farts club" and sit around comparing pains, pills and procedures.
Sue

This may already be part of your housing pros and cons list, but bears thinking about. A piece of remaining independent as long as possible involves, of course, transportation. Moving closer to a town that has dedicated senior citizen bus service available would be a huge help in the future for if/when driving is difficult due to numbness of your feet/lower legs or if your partner is not able to drive for whatever reason. Living closer in allows for delivery services for groceries and medications too. I use curbside pick-up now almost exclusively, but in winter use delivery, just not safe to try to navigate snow/ice.
Last thought- after following a guy using a cane across the tarmac to our jet, then watching him quickly collapse it- I got me one of those on Amazon! It fits in a small pouch and I keep it in the car- easy to grab if I’m going to need to do distances (MD offices) or am feeling unsteady for some reason. In airports, people don’t jostle you either. 😊