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Me & my PN: Why do I lie?

Neuropathy | Last Active: Jun 29, 2023 | Replies (30)

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@ray666

Hi! I'm neither in favor of never sugar-coating nor sometimes sugar-coating nor always sugar-coating. What I do is consider the person or persons I'm spending time with. The first example that comes to mind is my Friday writers' group. There are five of us, and we've been working together for a half dozen years. If, during our three hours together, I should get up to go to the Mr. Coffee for a refill (something I do with terrifying regularity), in the past no one would pay any mind to my crossing briefly out of the room. Now if they spot how I have to trace my fingertips along the edge of the mantle, then reach quickly for the doorpost, they'll notice. I decided some months ago it made sense to tell them what's what. With people like these people, in a circumstance like that, it was the right thing to do. It helps them, and maybe even more importantly it helps me. ––Ray

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Replies to "Hi! I'm neither in favor of never sugar-coating nor sometimes sugar-coating nor always sugar-coating. What I..."

Hi Ray, I am new here and have enjoyed this honest conversation that you started. It really does make you think. I am experiencing numbness in my hands and feet. I have had several of my Drs, come up with different causes, or ideas, of what it may be.
I had a 15 min cram visit with my GP, Tuesday. My health issues seem to overwhelm him, as they do me, at times. Anyway, I forgot to show him the knots on my finger joints. I wrote him on the portal and said, " I know it's important to be "honest" to receive the best care, but I truly just forgot. I told him I thought it was RA, and explained my reasons. I have MGUS and low platelets etc so a repeat blood work was already ordered, and he said he would add the screening for RA. I had an ER visit three days later, and during the complete work-up to find my emergent problem, wouldn't you know it, I was told I have RA. I am glad I didn't just let it go until the next visit in several months, and that I am smart enough to dig for answers, and know my family health history also. Now I need to contact him again and gently tell him, thanks for the referral for carpal tunnel, but I truly think this is PN. I guess I also need to make him aware of the RA confirmation also. My balance has been an issue the last several years. I fell at work a few years back, had discs replaced and worsening symptoms with sciatica and numbness. Now, 5 years later, it's not just my feet being numb, but my hands also. I wonder if I can skip my co-pays, or get a discount, since I am out here self diagnosing, just kidding, lol. So glad to be here, and thankful to be my own best advocate! Knowledge is such a powerful thing, and it's great to learn from, and help others! Take care Ray, I hope you are more honest in the future! They say the truth will set you free. 😁🤗