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@lisalisa

My daughter has had these sudden red heat rashes come and go for several years. We have never known what triggered them… EPI pens have had to be used in the past 4 months, as they have been progressing and increasing in frequency. Neurologist felt it was MAST cell activation as well, and referred us to Genetics testing and allergy.
Her labs are always “good” ANA’s wax and wane…. I understand your frustration.

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Replies to "My daughter has had these sudden red heat rashes come and go for several years. We..."

@lisalisa Have you been able to take your daughter to a geneticist? And have you learned anything? Your daughter’s symptoms seem to be increasing and you’ve been using an EPI pen.
Frequent use of an EPI pen could signal a progression of a disease.
Has she been back to the doctor who prescribed the EPI pen?