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DiscussionHow long does it take for Tymlos side effects to subside?
Osteoporosis & Bone Health | Last Active: Sep 7, 2023 | Replies (185)Comment receiving replies
Replies to "I am starting Tymlos on Tuesday and concerned about the side effects."
I am also starting Tuesday and extremely nervous about side effects and hope it works for us!
I was too. I started out at 3 clicks, mostly because I was scared of side effects, and because @windyshores was super helpful in these chats explaining how we could start at a lower dose and work our way to a therapeutic dose. I discussed it with my endocrinologist, who said she didn't have a problem with that as long as I reached a therapeutic dose as soon as possible.
So I went up a click every 3-4 days. Everything was beautiful until I reached 6 clicks, where I started to feel nauseous, and tired, and had some palpitations. But it really was very tolerable and I took it as a sign that I was reaching my therapeutic dose. I tried 7, but I definitely wasn't ready, so Y skipped a day, went down to 5, and worked my way back to 6. I have been at 6 for a couple of weeks and the effects have diminished notably (still a little nauseous, a couple of hip or lower back pain here and there, but very tolerable.
If you go to http://www.tymlos.com, they have a great video on how to prep the pen for the first time and how to use it. I only used that video and found it was a lot easier to get used to than I would have thought. I have read a few studies about results and am very grateful to have found this alternative. I have suffered 8 vertebral fractures (5 lumbar and 3 thoracic) and two rib fractures. That is way worse than any side effect.
I prepared a table where I track my dosing and side effects to discuss with my doctor. Here is a screenshot if you might find it useful. I have duplicated it and have a new tab for each pen.
I wish you success with your treatment.