Hi, Sue! (@sueinmn)

I was just telling @njed that I didn't get to "follow through" in confessing to my partner that I am becoming concerned about my balance possibly deteriorating but that she and I had the most straightforward conversation about PN symptoms we've ever had. We had just finished watching "Still," the documentary about Michael J. Fox and his Parkinson's. My partner knows that there's a fundamental difference between Parkinson's and PN, and the symptom-management challenge Fox is confronting, if compared to my wobbliness, would be like comparing Mt. Everest to a pimple; nonetheless, watching the documentary resulted in a level of PN honesty my partner and I had never had before.

What you said to your PCP, "I can't live like this anymore" ¬¬––six simple words amounting to the "best thing [I] ever did!" All I can say is, WOW! Ditto! Two thumbs up! (more if they were thumbs). I've taken to telling my doctors, whether it's my PCP or one of my neurologists, "this condition" (whatever condition we happen to be discussing) is "interfering with my life." I found that the expression––"interfering with my life"––almost always gets a doctor's attention. Privately, it tickles me to think of the "life" that's being interfered with: years ago (years before my PN diagnosis), the "life" was my long-distance running; a couple of years after that, the "life" was my joy in high-country hiking; only a few years ago (just before PN diagnosis), the "life" was my stage acting; today (with PN) the "life" that's being interfered with is walking confidently from my parked car to the front door of the local supermarket. How things change! LOL

I wish you a fabulous summer!

Cheers!
Ray