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← Return to SFpN UNDER age of 60?
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I'm very sorry that you are in this situation. My son also has it, was diagnosed with SFN about 16 months ago at age 37. He has young son and is very athletic so this has been extremely hard on his young family.
He has tried various diets and has found the less sugar he has (including any alcohol) the better. He even did the carnivore diet (meat only) and found that helpful, but hard to sustain.
He will not take pills (for pain or anti-anxiety) prescribed from Doctors as he feels this contributed, if not caused his SFN. With each visit to a doctor they only wanted to prescribe pills not help us find why this happened. They of course said it was idiopathic SFN as he is in very good physical shape and not diabetic.
It's very frustrating that there are not research funds or trials to find out the "why" when an idiopathic diagnosis is given. So we are all on our own to try to find common links and useful information on relief.
I can tell you he would not take the vaccine, but did have Covid twice during the surge. He did not have a bad experience, more like the common flu virus each time.
We do see a correlation to stress/anxiety which will increase symptoms. He has balance issues and hot/cold/wet skin, feet pain and numbness.
We wish you all the best and his neurologist says she has seen it regress completely, so we are hoping for turn.
Best of luck to you!
Replies to "I'm very sorry that you are in this situation. My son also has it, was diagnosed..."
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Thank you so much for sharing your experience. It's surely soothing to hear that your son's condition has improved significantly. I will continue to wish for his complete recovery. Having idiopathic diagnosis is definitely frustrating and with SFN association with covid 1 vaccine, there is not much known about the exact mechanism that leads to destruction of small fiber nerves, although some studies seem to suggest that this is likely autoimmune/immune mediated, Even if this is the case, I believe there is not much we can do at the moment to directly target the immune cells that is causing the problem. We can try therapies that temporarily suppress immune system or inciting autoantibodies but as long as the target cells are still active it will continue to destroy the nerve. I will just have to pray that overtime my immune system calms down and allows me to recover. Like you mentioned, we really need more rigorous research to find more targetted therapy and to understand the various mechanisms causing the issues. I hope we can find something soon. Like you have indicated above, I have tried my best to keep my health at the optimal state through healthy diet, intermittent fasting, and treat my pain symptoms the best as I can. I hope and pray that it gets better.