Tymlos side effects I've encountered

Definitely!
Every time I feel a little swamped by the side effects, I remind myself of the miserable months when I fractured all five lumbar vertebrae with just the vibration of drilling four holes in a wall. I'll choose the side effects any day!

@mmodestti I am so sorry that happened to you. A similar thing happened to me and one instant has effects for the rest of our lives. I hope your pain isn't too bad and yes, people like us are sticking with meds despite some side effects! If it helps, I will say (again) I had dramatic improvement on my DEXA with Tymlos!

I am so glad that you have seen improvement. I have read various articles on Tymlos research, and feel very hopeful. Their results are very promising.
Thank you for sharing so much valuable information in these groups.

@mmodestti I had 20% gain in spine (-3.6 to -2.5) and 9% gain in hips. It was worth it!

Awesome! 👏🏼👏🏼👏🏼

That’s good to know about the articles you have read about tymlos. I’ll see if I can find some to read and share with my husband.

Thank you windyshores for all your supportive comments. I am having some last minute labs run today and then start my tymlos on Thursday and I am so frightened. Trying to find someone who can be here with me the first time. My blood pressure is normally around 90 over 60 so I am nervous about that. Have you experienced a drop in blood pressure after you take tymlos?

Hi, I'll weigh in about the blood pressure drop. Your BP numbers are my numbers. Anyway, Tymlos will reduce your blood pressure -- that's what accounts for the tachycardia. ( If you haven't read about that part, welcome....) The increased hear rate is your heart is trying to make up for the drop. Anyway, to deal with the tachycardia, which is distressing but apparently not dangerous, the Tymlos nurse recommended that I lie down and elevate my legs. It absolutely works. Yes, it turns the injections, which take seconds, into "a thing" that can last 15 minutes for me, but it's worth it. I generally inject before going to bed so lying down doesn't become too big a deal. Good luck on Tymlos. I found it a difficult adjustment. I am 3 months in and only up to 4 clicks, occasionally 5. Ramp up slowly.

@candy209 I also have low blood pressure- the same as yours. I bought a home blood pressure monitor and used it at first before, and after, my injections. I hydrated well and sometimes ate something salty. Not sure if the salt was useful but it made me feel safer psychologically.

It does lower bp, but I was okay. I have afib that can be triggered occasionally and was afraid of that recurring, but when I started at two clicks and moved up slowly, I had no heart issues at all.

I think you are going to be 100% fine at two clicks of the pen, to start, (let your doc know) and will be able to move up to a therapeutic dose within a month. No need to be nervous about that low dose so maybe that is a place to start. Buy a blood pressure cuff at the drug store. Noone has had any serious heart or bp issues with Tymlos but might as well try to avoid the fears.

I'm on Tymlos and no testing to see if it works for another 3 - 4 months (based on insurance coverage) I sure hope it is working as I have no side affects.