← Return to Any difficulty in diagnosis of PMR?

Discussion

Any difficulty in diagnosis of PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Jul 1, 2023 | Replies (51)

Comment receiving replies
@emo

It’s sad that the system is like this, but I feel like a lesson I’ve learned is to keep asking and looking for providers until I find the one(s) who listen, believe, and support. Those careless/dismissive side remarks people make like “every little pain,” reallllly stick. I definitely have some quotes like that, that stick out: “Just try not to think about it for a while,” etc.

That, and we have to keep advocating for ourselves. Even if I have blind spots and biases too and some of the time don’t know what the heck my body is trying to tell me, I know my body best (or so my PT and my best doctors are always trying to remind me >_

Jump to this post


Replies to "It’s sad that the system is like this, but I feel like a lesson I’ve learned..."

I decided my body trying to tell me it was really mad at me and I had to listen and make changes esp related to stress. It was also quite a relief to get the dx of pmr and know this was real pain and certainly not in my head.