Welcome to one of the world's crappiest clubs.

I'm in exactly your spot.

Many elevated endocrine markers, hyperparathyroidism w/2 adenomas already removed & it's recurring, many elevated tumor/inflammation markers. But each specialist only deal with their tiny piece of the puzzle. Where are the multiple endocrine neoplasia teams!

I'm going to insist on PET/CT with my PCP. Not with a MEN-specific contrast, b/c I could be wrong. They could be other tumor types or fibrosis of major organs like kidney or liver. I'M NOT A DOCTOR!

I sure would like one, though.

I'll fly/drive where I can order imaging myself, if need be.

Good luck. It's rough out there.

Jump to this post