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@jakedduck1

@1775house
Hello Leslie,
Well, unfortunately, it appears your math skills are up to par.
I certainly don’t like being 70 but I only have eight more months to go, but I suppose I’ll like 71 even less.
I’m not familiar with the term “mono Clonic” seizures. What type of seizure is that? Could you possibly be thinking of myoclonic seizures? You mention seeing people then not being aware for hours. I assume you were sleeping during that time. And the weakness which may possibly be Todd’s paresis. Although unqualified, what you described doesn’t sound like absences that I’m familiar with. but I am no doctor. Just curious if they might be focal impaired seizures. The two are often misdiagnosed. The weakness, I believe is more common in Focal seizures. Have you ever been diagnosed with JME Juvenile myoclonic epilepsy or TLE Temporal Lobe Epilepsy?
@santosha can speak more about TLE and if she had any of your symptoms.
Easier said than done but no use worrying about getting sick. Whatever is going to happen will happen. Live and enjoy each day without fear, worry, stress and anxiety. There will plenty of time for those emotions. Why ruin a perfectly good day with those unnecessary feelings that are creating illnesses in exchange for one that will likely never occure? They say 90% of what people worry about never happens anyway.
My brother also has it as do his two kids. None of his grandchildren have it.
My Epilepsy has been a challenge. I had frequent seizures usually daily or every other day up to 12 a day unless I went into Status Epilepticus and had to be put into an induced coma. Comas lasted days, weeks, or months. The longest coma was 8 months. I was 15 and lost every memory for those 15 years and with subsequent episodes I lost more memories. For me, the hardest part of having Epilepsy is the loss of my ability to play the piano. I get emotional dusting it even nearly 60 years later even though I don't have any memories of when I played well.
My seizures were uncontrolled for 45 years. I take 1000mg of Carbatrol & 162mg of Phenobarbital. I refused neuromodulation and epilepsy surgery. Fortunately, my parents supported my decisions. What meds are you taking?
Take care,
Jake

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Replies to "@1775house Hello Leslie, Well, unfortunately, it appears your math skills are up to par. I certainly..."

Hi Jake, actually go t back from my neurologist yesterday what the dx specifically is generalized convulsive epilepsy with intractable epilepsy CMS-HCC. Specifically where in the brain all that is you got me. Yes myoclonic is the word. There have been so many words thrown out over the last 30 years. The weakness I have is likely due to a stroke like episode I had somewhere around the same and perhaps even precipitated the epilepsy to being brought to the forefront even with these last two hospitalization with all the MRIs they've done my PCP/internist is putting me on a stroke preventative protocol because it shows multiple events. I wholly agree with you Jake you really can't worry too much I feel if you got at each incident in your life with the idea that you'll address it, you'll accept it' you'll fix it (if you need too) and you move on that moves to the my next statement every success begins with a failure and the only failure that starts another failure is not asking what's wrong OH! you've now made your first success in that situation 🙂 I will have this long staring spell and now my neurologist asked if I wanted an emergency med (Ativan) for the seizures that bring me to the ER. The on in Jan were seizures of and on over 5hrs and on for 1hr straight while I could sometimes respond to them. He thought if someone around me could treat me I could avoid the hospital and all the problems along with it. That is pretty good for a professor who teaches at the hospital I would go to, or maybe it is he is just tired of seeing me :). Well the meds I take are Lamictal and Zonesamide (sp) I've been taking them for probably 7years and they work really well they have been titrated up and down depending on the circumstances but I started out 30 years ago with Depakote and that did not work. Well I've rambled you take care - Leslie