← Return to Living with epilepsy - Introduce yourself & meet others
DiscussionLiving with epilepsy - Introduce yourself & meet others
Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)Comment receiving replies
Replies to "@1775house Hello Leslie, Well, unfortunately, it appears your math skills are up to par. I certainly..."
Hi Jake, actually go t back from my neurologist yesterday what the dx specifically is generalized convulsive epilepsy with intractable epilepsy CMS-HCC. Specifically where in the brain all that is you got me. Yes myoclonic is the word. There have been so many words thrown out over the last 30 years. The weakness I have is likely due to a stroke like episode I had somewhere around the same and perhaps even precipitated the epilepsy to being brought to the forefront even with these last two hospitalization with all the MRIs they've done my PCP/internist is putting me on a stroke preventative protocol because it shows multiple events. I wholly agree with you Jake you really can't worry too much I feel if you got at each incident in your life with the idea that you'll address it, you'll accept it' you'll fix it (if you need too) and you move on that moves to the my next statement every success begins with a failure and the only failure that starts another failure is not asking what's wrong OH! you've now made your first success in that situation 🙂 I will have this long staring spell and now my neurologist asked if I wanted an emergency med (Ativan) for the seizures that bring me to the ER. The on in Jan were seizures of and on over 5hrs and on for 1hr straight while I could sometimes respond to them. He thought if someone around me could treat me I could avoid the hospital and all the problems along with it. That is pretty good for a professor who teaches at the hospital I would go to, or maybe it is he is just tired of seeing me :). Well the meds I take are Lamictal and Zonesamide (sp) I've been taking them for probably 7years and they work really well they have been titrated up and down depending on the circumstances but I started out 30 years ago with Depakote and that did not work. Well I've rambled you take care - Leslie