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Longcovid Lymphatic Dysfunction

Post-COVID Recovery & COVID-19 | Last Active: Jul 26, 2023 | Replies (18)

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@mitchmysterysymptoms

I'm thinking I'm doomed by a rural healthcare 'desert' I retired to, because, 'Long Covid'.

After at least one but likely two cases of COVID beginning December 2021, I have 'a list of symptoms' - the most bothersome and disconcerting to me being, 'LYMPHATIC SYSTEM INFLAMMATION' that cycles on 'a continuous sinewave' of 'expand and contract' for a minimum of the past 10 months (today is June 23, 2023). I'll use a scale of 1-10 to describe a range of severity of inflammation in my 'under jaw lymph nodes' with '1' being 'no inflammation' to '10' being 'maximum expansion possible' (meaning to me, they all seem to be distinguishable by touch, very firm/hard, and maximum inflammation experienced 'during my lifetime' from any cause including strep throat, etc.). So, every daily 24-hour cycle my neck nodes expand and contract from a '2 to 8' with '10' maybe every 36-48 hour cycle-period. They are never, a '1', anymore Early on, I thought it was 'only' my neck nodes that were swelling (accompanied by my 'other symptoms' which included and continue, still: chronic fatigue, vertigo, brainfog, runny nose, heart palpitations/arrythmia, general malaise and severe insomnia (since improved after experimentation with various methods ending in mega-dosing with OTC melatonin)). After a few months and efforts at trying to be attuned to everything going on with me regarding the variety of 'issues' I seemed to be experiencing, I noticed that a few other 'bodily discomforts' just happened to be 'adjacent' other lymph nodes of my complete lymphatic system. For example, I found myself having to 'adjust my testicles' when 'sitting' because they seemed to be 'getting in the way' and 'I could not kneel on my knees without using special kneepads' due to 'excruciating pain' that felt like needles being jammed into my knees if I tried to kneel - and so I began monitoring how 'those' synchronized with my neck nodes expansion and contraction and found 'synchronicity'. Research on 'inflammation' led me to try using 'NSAIDS' (mega-dosing) for a few days in an attempt to reduce 'inflammation' - and see if that helped 'anything'. It seemed to, but luckily I also read that if continued, 'it'll kill you' if you overdo ingesting NSAIDS/Aspirin, so cannot continue that regimen. After being pretty much 'housebound' by it all, I finally got to a 2nd appt with a primary care doc, who (to be understated), seems incapable of helping me, whatsoever, to-date. I did have 'lab tests/bloodwork' which came back normal, including the addition of a 'cancer screen', due the 'chronic inflammation' of lymph nodes. I intend to continue persuing, which is requiring me being 'assertive' and also finding another 'primary' I will visit in a couple of weeks. I would love to know if anyone else has experienced a similar issue with their 'holistic lymphatic system'. ALSO, from my own research of medical research, investigations and literature including from 'numerous respected sources', it all has me wondering if my 'BRAINFOG' might be attributed perhaps to 'lymph nodes' within in my skull, possibly 'inflamed and pressing on brain' during this 'continuous ongoing sine wave of expansion/contraction'. Anyone? Also, at this point, I am considering selling my home and relocating back to 'some metropolitan region' where I previously had access to 'good healthcare infrastructures', because I do not have that 'luxury', where I currently reside.

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Replies to "I'm thinking I'm doomed by a rural healthcare 'desert' I retired to, because, 'Long Covid'. After..."

I got the best results from a doctor run holistic group.
only a few supplements and most of my symptoms are gone after 2 months of treatment

I live in top Sulicon Valley medical community and my docs have no ideas what’s wrong with me! I have arthritis and thus a challenge d immune system- but I’m the only one so far who thinks that’s relevant! The Orthopedic docs treat sore knee joints it have little interest in my all over aching joints and total exhaustion. I’m 80+ and they imply I’m lucky to be alive! Stanford Med Center has just opened a “Post Acute Covid clinic and I’m trying to get accepted there… so far NA!
God bless us all!😇