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Myasthenia Gravis post COVID

Post-COVID Recovery & COVID-19 | Last Active: Jun 23, 2023 | Replies (15)

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@jmattiii

Hi Ephrum:
Like you, I started with slight double vision. The eye muscle involved lends them to suspect myasthenia and they probably noticed worsening when they intentionally fatigued it with some exercise during exam. They tried an tensilon injection which they use for further confirmation (if it works, it temporarily improves the issue) and hence, it further confirms the myasthenia diagnosis. If only ocular symptoms are present, it often does not work, and hence an opthamologist that is experience with myasthenia is good. I was then referred to a neurologist, Dr. Richman, at UC Davis, that had studied myasthenia since residency and collaborated with the a renowned myasthenia doctor from UCLA. He recommended an early intervention and I had a thymectomy performed at UC Davis by a doctor who had done 100 of them (as of 1996) and was presenting papers to the Thoracic Surgeons Society regarding techniques. 100% remissed within 2 years and no re-occurance over 27 years! I was 45 when diagnosed. I considered the transervical technique done at USF, but my surgeon said, "the thymus is often tangeled up in veins or arteries, and they have to immediately go through the sternum." He likes to see that it and make sure he got all of it. I gambled on the thoracic specialist and it turns our mine was all wrapped around arteries like he said could happen. You can bench press in three months. At a followup seminar with Der Richman, He was wincing at some of the comments about what other's doctors were telling some of the patients in attendance. I could answer most of the questions asked with the expertise I received. Check into the Myasthenia Gravis Foundation for tons of info. I wish you the best and I pray that your outcome will mimic mine given the similarities of how your symptoms and mine seem similar. I hope this was helpful.

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Replies to "Hi Ephrum: Like you, I started with slight double vision. The eye muscle involved lends them..."

Thank you so much for the info. I see a opthamologist/neurologist Monday and hope to get a clear diagnosis. I am learning to cope with the double vision but the weakness and exhaustion are debilitating. Hopefully I will get some help. Thank you again.