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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)

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@mjohn

I am guessing the anesthesiologist might suggest lidocaine infusion. They have published a few papers on the use of lidocaine in extreme cases where people can't function at all without their feet and sometimes entire body feeling like it is on fire all the time. However, it did work for those I read about.
Thank you all for your input.
P.S. I do find that every evening I soak my feet in warm water for 20 minutes. They get very red while doing it, but once out of the water I moisturize them and settle in my recliner to watch some t.v. Since I cannot tolerate a closed shoe or sneaker, I live in sandals year round and my feet take a beating. I live in NJ. Winters get cold, but my feet LOVE it. It is my happiest and most functional time of the year!!! My dog loves it too because he gets daily 3 mile walks in winter. Can't say the same for warmer weather. Oh, and get this one - One doctor I visited suggested I just move to Alaska!! I couldn't believe he said that.
Thanks to everyone for their input!!

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Replies to "I am guessing the anesthesiologist might suggest lidocaine infusion. They have published a few papers on..."

I too soak daily with warm water about 100 degrees. Seems counterintuitive but I think helps desensitize to the heat of a flare. Also feels good and is relaxing making me think I’m doing something positive without drugs.