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Sharp pain in groin and penis started two weeks after catheter removal

Prostate Cancer | Last Active: Apr 25, 2024 | Replies (36)
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@jmccune65

Hi sorry for your situation. I had my prostate removed 9/28/21. Ever since my catheter popped out on its own 5 days later I have had pain in the tip of my penis both during urination and other times when not urinating. I have seen numerous urologists and tried several medications. Unfortunately no one has any answers and nothing works to relieve the pain. I also tried pelvic floor therapy to no avail. I'm convinced the catheter injured me.

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Replies to "Hi sorry for your situation. I had my prostate removed 9/28/21. Ever since my catheter popped..."
bfg1 | @bfg1 | Jun 23, 2023

I’m just leaving urology Mayo Clinic Rochester for the same pain you describe. Mine is now 21 months since the RP.
They think it is Lichen Sklerosus.
The treatment prescribbed for me is several weeks of intraurethral steroid ( clobetasol ) This diagnosis from cystoscopy and physical exam both urology and dermatology. I’m hopeful as I have been suffering for 21 months with no answers and lots of testing for typical uti type infections.
You may want to reach out to a specialist in urology because many urologists are not up on this and it is not so common a problem apparently.
I plan to update here after I get some time in on my treatments.
I wish you well.
Stay tuned.

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