Hi @pb32680pbnew

I had stage 1 BC 10 years ago, BRCA2+ so mastectomies and nothing else. 7 years later, I had a new tumor in my chest wall and pectoral muscle considered MBC, treatable but incurable at this point. This cancer is 3x as aggressive (Ki-67 50%) as the original cancer. They removed the tumor and part of the muscle, but there was a positive margin. My onco also told me because the cancer is sooo aggressive this time, some cells likely got away into other areas of the body before they removed the chest tumor. I had 37 radiation treatments to my chest then started on Kisqali and Letrozole 29 months ago. I'm 3 years out from finding the new tumor. The Kisqali is not only for the chest area to hold any remaining cancer cells there at bay, but to hold any escaped cells at bay. At least that's the way I understand it all. I'm afraid to stop it because once my cancer takes off again, it's so aggressive, I'll be in trouble.

So, at this point the CT scans are clear for visual BC tumors, but the Kisqali and Letrozole are to delay the colonization of new tumors from the cells roaming around out there. I couldn't take chemo because of my pre-x neuropathy and he told me he wasn't sure it would be effective on this new cancer anyway.

I also have 50+ tumors in my lungs due to lung NETS/DIPNECH - neuroendocrine cancer so the scans are monitoring the growth on those. Too many to remove. I had microwave ablation to destroy the largest tumor 2.6 cm to prevent mets from that. My concern is if the BC goes to my lungs, will they even notice or know it's MBC instead of lung NETS? I'm on meds for the lung NETS too. Lots going on.

I also originally asked my onco, just out of curiosity, what would happen if I did nothing with this new MBC tumor. He said the cancer is so aggressive this time, it would be everywhere in months. So, I stay on the Kisqali. As the saying goes, "If it ain't broke, don't fix it." 🙂