← Return to Any difficulty in diagnosis of PMR?

Discussion

Any difficulty in diagnosis of PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Jul 1, 2023 | Replies (51)

Comment receiving replies
@kberlyhouse

Initially after my first bout of Covid, 4 months later I woke up with terrible hip pain and debilitating weakness, and after I got Covid a year later for the second time (6 months after 2 Pfizer covid vaccines!) I couldn't raise my arms and my shoulder/collar bone pain was severe. After a year of testing (my CRP and SED rates were initally totally normal), I was finally diagnosed with PMR. My CRP and SED were high at the beginning of this year, and I am still on prednisone and waiting to start Kevzara next week, but when I weaned down to 1 mg prednisone and then 0 last month to see where I was with the condition, my CRP/SED was again normal. Go figure! My debilitation and pain came right back so I'm on 10mg prednisone again after weaning down from 20. It's all so mysterious.

Jump to this post


Replies to "Initially after my first bout of Covid, 4 months later I woke up with terrible hip..."

I started Kevzara a month ago. still on prednisone with it but the hope is that the Kev will help to wean me off the prednisone. This is a new diagnosis, the first serious condition I've had in my entire life (I am 85) so I realize that's lucky, but it's still a shock and depressing.