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Anybody else have these weird symptoms?
Neuropathy | Last Active: Jul 1, 2023 | Replies (12)Comment receiving replies
Hi Susan, yes I've seen a neurologist and he's an idiot. (See my previous post 'pins and needles')
I've got peripheral neuropathy, but don't know the cause. Based on symptoms and online research, I don't have Occipital Neuropathy or Raynaud’s disease.
Small Fiber Neuropathy seems most similar to what I have (again, based on my online research) but I really need a competent neurologist to diagnose it.
Has anyone been diagnosed with Small Fiber Neuropathy, and do you have similar symptoms?
Or, has anyone with similar symptoms been diagnosed with anything else?
Replies to "Hi Susan, yes I've seen a neurologist and he's an idiot. (See my previous post 'pins..."
@leeisme
At first I was diagnosed with small fiber neuropathy.
About 2 years later the diagnosis was changed to large fiber neuropathy.
I felt the same with small, and large. There was nothing I could discern from my body that showed me the progression.
I can’t give even one example of something that changed.
Change to a different neurologist if you have that option.
En comunicaciones anteriores he leído pacientes con neuropatías de fibras pequeñas.Perp no sé cómo se pueden recuperar comentarios anteriores.Inclusive leí hace un rato sobre un paciente que después de exámenes han descubierto que es el último de la familia que después de 5 generaciones portadoras de un gen causante de este problema,es el el último que lo portaba,ya que sus hijos no lo tienen.Pero no puedo encontrar ese comentario que me puede ser muy útil.Si alguien lo leyó y puede
ubicarlo, agradecería que lo hiciese.Gracias.
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There is a Facebook group for people with Small Fiver Neuropathy. Many people with Small Fiber Neuropathy have PolyNeuropathy. I am one of them. I didn’t realize many of my other symptoms were related. You can Google this.
My Autonomic Nervous System issue with IBS, many UTI’s. Fainting came first. It 72, I learned I had defects of genes related to Charcot Marie Tooth and Small Fiber Neuropathy. I was glad to know but still no real help.