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Anyone have input on living with symptoms from cardiomyopathy?

Heart & Blood Health | Last Active: 2 days ago | Replies (58)
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@sueq447

Had various symptoms, even while on medication. I was diagnosed about 6 years ago. Have been hospitalised for arrythmia twice, had pneumonia plus tachycardia requiring cardio version once, had 3 angiograms so far. Very important to be calm. Think positive thoughts, take it one day at a time. Rest. Dont allow stress. Take your medication. Eat vegan if possible, keep cholesterol down. Move around as much as you are able. Watch heart rate, rather use weight training and resistance for mobility and muscle tone.

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Replies to "Had various symptoms, even while on medication. I was diagnosed about 6 years ago. Have been..."
Debra, Volunteer Mentor | @karukgirl | Jun 22, 2023

Hi there @sueq447, and welcome to Mayo Connect. Boy! It sure sounds like you have had quite a time with HCM. I like that you say to have positive thoughts, that is so important for your mental health as well as physically. You offer good advice. One day at a time. Don't allow stress. Etc. I hope you take a look around the Hypertrophic Cardiomyopathy site. There is a lot of good information being shared by other members and you may find some interesting things you didn't know before. Learn as much as you can about HCM so you can be your own best advocate.
May I ask, do you know if you have Obstructive HCM?
Is your cardiologist specialized in treating HCM? Are they aware of Camzyos, the newly approved drug for treatment of HOCM?

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