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Recurrent anaplastic oligoastrocytoma or necrosis?
Brain Tumor | Last Active: Sep 3, 2017 | Replies (16)Comment receiving replies
My tumor is quite rare...it is an Anaplastic Pleomorphic Xanthoastrocytoma, or short form is Anaplastic PXA. Brain tumors always have to be such long names!! Besides my 5 surgeries and 2 different radiation treatments I was treated with Temodar, CCNU, PCV combination chemotherapy and Avastin. To say the least I have lots of experience in the brin cancer world, but have tolerated everything overall very well and would consider myself "healthy." I stay active and just keep Living Life! I hope your daughter can do that too!
Replies to "My tumor is quite rare...it is an Anaplastic Pleomorphic Xanthoastrocytoma, or short form is Anaplastic PXA...."
@audrapopp
Has your tumor shrank since you chemo? Or have you been cleared of no signs of tumor?
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Wow you have had a lot of experience . My daughter was diagnosed dec, of 2014... This is all new to us ,and very scarey . She is dealing with necrosis , so they think . Every time she gets taper off steroids she has a seizure and they put her back on them .. Seems she has been dealing with this since her surgery , I'm worried about what they can do for her .. Lately she has become so tired , I have a hard time getting her to do anything even though she says she doesn't feel bad . I have never heard of ur kind of tumor , it must b rare . What grade is ur tumor .. Sorry for all the questions , I'm just so worried . <br />
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