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121861 (@121861)

Recurrent anaplastic oligoastrocytoma or necrosis?

Brain Tumor | Last Active: Sep 3, 2017 | Replies (16)

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@audrapopp

My tumor is quite rare…it is an Anaplastic Pleomorphic Xanthoastrocytoma, or short form is Anaplastic PXA. Brain tumors always have to be such long names!! Besides my 5 surgeries and 2 different radiation treatments I was treated with Temodar, CCNU, PCV combination chemotherapy and Avastin. To say the least I have lots of experience in the brin cancer world, but have tolerated everything overall very well and would consider myself “healthy.” I stay active and just keep Living Life! I hope your daughter can do that too!

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Replies to "My tumor is quite rare...it is an Anaplastic Pleomorphic Xanthoastrocytoma, or short form is Anaplastic PXA...."

Wow you have had a lot of experience . My daughter was diagnosed dec, of 2014… This is all new to us ,and very scarey . She is dealing with necrosis , so they think . Every time she gets taper off steroids she has a seizure and they put her back on them .. Seems she has been dealing with this since her surgery , I’m worried about what they can do for her .. Lately she has become so tired , I have a hard time getting her to do anything even though she says she doesn’t feel bad . I have never heard of ur kind of tumor , it must b rare . What grade is ur tumor .. Sorry for all the questions , I’m just so worried .

@audrapopp
Has your tumor shrank since you chemo? Or have you been cleared of no signs of tumor?

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