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@rosemarya

@kathleenla, @gregsr, @kamama94, @sissieann, @marvinjsturing, @rans,
How are you doing?

Some of you mentioned your involvement with the Kidney Project. What is happening to date? How is it going so far?

Here is a link that @2gallonhabit has recently shared from a biotechnology company engaged in the development of fully biological human organs with the goal of solving the chronic shortage of transplantable organs. I think you will find it interesting.
http://www.miromatrix.com/

I am amazed by the possibilities for the future. Any thoughts?

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Replies to "@kathleenla, @gregsr, @kamama94, @sissieann, @marvinjsturing, @rans, How are you doing? Some of you mentioned your involvement..."

@rosemarya, feeling quite well and energetic though I have no idea what my next labs will say.

Bioengineering kidney tissue or an entire kidney will be in the near future, though probably not near enough for some of us. I'm still looking at eventual dialysis but am trying to postpone it as long as possible with proper diet, rest, appropriate fluids.

Neph wants me to have an AV graft sooner rather than later, 2nd opinion neph disagrees, so far nobody has decided anything. Or if they have they forgot to tell me.

Getting info from my neph is like pulling teeth. Sometimes I wait a couple of weeks for a less-than-satisfactory partial answer. Since I cannot travel and have few insurance options, my current neph is basically the only one I can access. It's a bummer but I'm coping.

Currently working on diabetic and kidney friendly Native American ingredients recipe collection and having lots of fun. "Cooking Cherokee" literally is in my DNA, I just have eliminated all meat from my diet and from the recipes. Other than that, they're authentic.

How are YOU?

I've talked to my nephrologist about the mechanical kidney being developed in California. She described it as a miniaturized dialysis machine that is implanted in your body. This new one from Miromatrix really fascinates me - a transplant with no need for anti-rejection drugs! Not sure if any of this will be ready for me. I was just approved this week by Mayo to be placed on the active list at UNOS. Waiting now for my insurance company to approve it. My sister is going to Mayo next month to see if she can donate.