My son is 13 and was just diagnosed with ACNES my Dr. Tollestrup in Nevada. My sons symptoms are a constant burning pain in his upper abdomen. It hurts even more if he is active or eats. It’s painful for him to walk and makes him very nauseous to ride in a car. He has had this constant burning pain for 6 months. He does better if he is sitting down or lays on his right side. He has been seen my countless Doctors and had every test and lab in the book done on him. None of the pain medicines help. I read about ACNES syndrome and contacted Dr. Tollestrup. After reading my sons medical story, he believed he had ACNES and wanted to evaluate him and try a diagnostic nerve block. The nerve block immediately took away his pain. Now we are waiting to have surgery. We are ready for my son to get back to being normal. Hope this helps.